Spot, spot, lovable spot...

He's soft and cuddly and he smiles a lot...

Okay, I may be exposed to far too much children's programming.

Dragon is lovable, soft, cuddly, smiley.

The spots are not.

They are, however, going away... maybe... for now.

The first wave of spots came last Tuesday and slowly turned into hideous bruises and are almost completely faded, the second wave came on Fridayand are currently doing the bruise thing, the third on Sunday/Monday and seem to be staying a lot smaller (or are just taking longer to fully develop into disgusting welts and swollen lumps and things).

We have an appointment with the GP tomorrow, I have to get another urine sample from him before then. The course of action for now is weekly GP appointments and monthly pediatrician appointments. It may be for just one month or it could keep going for 3 or 4 months.

Do I sound like I have no idea what is going on? All I know is that we are doing everything that we can and we will get onto it straight away if it gets to his kidneys or bowels. I am checking every poo for blood and keeping an eye on his urine, it's so much fun being me!

Sorry I didn't update after our appointment on Friday, I had in my head that I did but obviously my head wasn't up with the times. I was wondering why people were asking how he was going when it was all there for them:) Thank you so much for caring about my little boy you have never met.

So when does your brain come back after having children?

We went to a Christmas party on Sunday afternoon and when we got there I made sure everyone knew that although it looks like meningococcol it is not contagious but one friend wasn't there yet. She's a nurse. She arrived later and took one look at his legs, stopped in her tracks and asked "what's the rash on his legs?" I put her at ease quick smart.

We had a lovely afternoon. Dragon wouldn't get in the pool but Lion and I swam while it was still super hot and then when it cooled down we got out and had some afternoon tea and Mr Grinch Wolf stayed at home in the air conditioning by himself.

I didn't take any photos there and you don't want to see Dragon's little legs, they look like he was bitten up by a super nasty mozzie and then beaten up by a garden gnome that couldnt reach beyond his thighs.

Pink spots, purple spots, green spots, yellow spots, red spots....

Okay, okay there are no green or yellow spots... YET. But we have the rest of them covered.

Arent you all so lovely for your comments. I checked for comments this morning as we were about to head out to our path appointment hoping that there might be one encouraging word for me (because I felt like bursting into tears and throwing up and crashing in a heap all at once) and there were stacks of lovely comments. Thank you for praying.

For the few questions that were there... No, it doesnt itch. No, it's not scarlet fever (we had a case at Lion's kindy a few weeks back so I was a little concerned about that). They didnt tell me how to use the collection bag for his urine sample. He hated it so I tried putting him in the bath tub, giving him a HUGE drink and splashing him with water alternating warm then cool to try and get anything out of him straight into the cup. That didnt work. In the end he did wee while we were doing the blood test but the bag had come away so it had all of 2 drops in it. They showed me how to get it on properly the next time and we left the path lab with a fresh one in place, picked up Lion and we were able to drive straight back and give them the filled bag (sealed up in a container).

They wrapped him for the blood test and he had 3 of us holding him down "because he has quite a kick on him" as the pathologist said. Next time I'll take the legs, looking into his eyes was horrible. Telling him I know how it feels but not doing anything about it was horrible for both of us.

He is also getting some tests for what might cause his "drinking problem". It may just be an OCD type thing or it may be something more sinister but he DRINKS. We often have to take his drink off him at dinner because he will not eat and just keep asking for more to drink. He will drink 2L or more of water a day which is quite a bit and has been doing this for a while so we figured it's time to get this checked out.

Thank you again, I'll be sure to post teh results when we know them. Our next apointment is 10am tomorrow with the wonderful Dr J.

Spots before my eyes...

Put a spot over here........

And a spot over there......

And a spot on your ear.........

And a spot on your hair.........

And a lot of little spots in the air everywhere......

It's a spotty kind of.........

NOOOO, NO MORE SPOTS!


My Poor baby Dragon has spots. Lots of spots. Mostly on his legs. He has HENOCH-SCHONLEIN PURPURA. It's an immune reaction to a strep infection (And on doctors orders I have not googled it). My first thought was... This is from a sore throat????

Look at his knee, that is how skinny his little legs usually are, and that right ankle is huge. Yesterday morning he woke up with a pink rash on his legs, not too many spots, they could have been insect bites. Through the day they got bigger and darker and by late afternoon they were looking like mozzie bites, it was slow and steady that far... within 2 hours they had become uneven shapes (obviously not bites) and BRIGHT red. We ducked off to the after hours doctor. By the time was saw the nurse each one had a little welt around it. By the time we saw the doctor each one had a goose egg around it and his right ankle was really swollen. The doctor gave us a diagnosis after consulting with our paediatrician over the phone (well her paediatrician husband since she had gone to bed) and made us a 9am appointment to confirm the diagnosis. After the paed got off the phone he and his wife had a chat and got looking deeper at other options in case it wasnt what they first thought. It wasnt. The first diagnosis was the same as far as immune reaction to an infection but the rash was the sole reaction. The new diagnosis was the Henochblahblahblah thing which can cause arthritis, renal and gastrointestinal problems. "I'll take the first diagnosis please Larry". So we have to collect a urine sample from a kid that wears a nappy (she gave us a nifty little bag or two for that but I'm still not thinking it'll be easy) and tomorrow we have a paediatric pathologist appointment to get some blood out of him. Then we are back to the fabulous Dr J on friday.

He seems to be fine other than the rash which she felt was positive but she gave me her home number in case we notice blood in his nappy contents. Dr J was just wonderful and she asked if her husband could come in and check out the rash (since it's not real common) and told us that she had to pull rank and use the "but he's my patient" line when hubby wanted to see us this morning instead of her. They had a med student at the rooms too so she came and got a bit more of an education. And she bought her camera in specially for photos of Dragon.

He is not at all a chubby bubby and he usually has very definate ankles, these look more like pregnant woman ankles. So we are keeping an eye on him and praying that it all settles down (it can last for 10 days or for months).

Dr J also is so kind, knowing we aren't flushed with funds she has opted to charge full fee for this first visit then only the rebate amount for however many appointments we need after that since it could be quite a few. SHE IS THE MOST BRILLIANT DOCTOR AROUND!

Sorry it's a long post, I wanted to put in all the information for family. I could write more but I cant remember what I wanted to write now because it's really late so this all probably doesnt make sense.